Thursday, February 24, 2011

Push.

There have been times, especially lately, when I feel as if I've been pushed to my limits in all areas. I often find myself wondering, "When is this hard stuff going to end?"

But, I'm lucky.
Lucky because I get to live with a really jumpy, curly, blond haired, blue eyed, bright as a headlight ray of hope.
I look at the scratches on his feet, torn up from braces and practicing climbing.
I look at his toes and the funky way the middle one sticks in the back, like it's hiding something.
I feel his anticipation and excitement when he attempts to communicate something and the person with whom he is communicating with understands.

Deak pushes, and pushes, and pushes.
Just to get through each day.
He pushes me to persevere.

And, for that reason I am going to push you, sometimes gently and sometimes with a little more torque.
Push you to register for our run and provide an opportunity for Deak's message of hope to be spread to others.
Although my major marketing onslaught will begin in a few weeks, I've already received registration forms from people whom I've not even met, and that fills my heart with so much joy.

Let Deak inspire you to push yourself just a little bit harder than usual on Saturday, May 14th. 
8:00 am.
Register online, or by mail as soon as you can to ensure proper t-shirt size or delivery (details on sidebar).

Deak, age 3, with two other children who have Ring 18 in Las Vegas at a Chromosome 18 Registry and Research Society Conference.

 Deak and an adult living with Ring 18. She is amazingly independant, has even lived on her own.

 Deak and Emarie in Vegas.  Emarie has 18q-, which is similar to Ring 18.

Deak, age 2, and our angel Em in San Antonio at the Chromosome 18 Conference. 

Kindred souls, worthy of your donations, prayers, and the push to run for hope.
Are you inspired yet?

Wednesday, February 9, 2011

Mail

I get so excited every single day to find new registration forms in my mailbox, it instantly will turn whatever type of moment I am having to joy.
Although the race is actually three months away, that time will sneak up (especially for me) very quickly.
Register as early as you can to ensure your preference for t-shirt size, because our race shirts are totally going to rock.
(Hint - they are going to be red.)
Thank you for all the support and love!  Deak's Race for Hope is quickly becoming more than I ever dreamed possible...and that is thanks to you.
Love,
Jenny

PS:  Spirit Runners - I will be sending your t-shirts to you as soon as they are made, most likely in March.  I will make sure they arrive ahead of time, so your heart and shirt can join us on May 14th.

Tuesday, February 1, 2011

I love me some good news...especially free good news.

The city proposal went well, to say the least.  Admittedly, it most likely had nearly nothing to do with me and a whole LOT to do with Deak and his story.
Our city has agreed to participate in advertising (for free).  Which means, if you live in the city where our race is going to take place...be prepared for bombardment in the coming months.  School fliers, city marque, city electronic sign (DATC), Utility bills, website, and the city newsletter.
Wow!
I am ecstatic, and full of hope.
Hooray for good people and kind hearts!