Updated Sponsorship Information

I have finally had a few minutes to update the 2013 Fundraising/Sponsorship letter for Deak's Run. 

Please, feel free to email, print, and share as you see fit. 

There are two forms, the letter, and the sponsor form; both of which are helpful.  The form details the sponsorship levels, and the letter explains the reason we are doing the fundraising.

I appreciate you all.  Spreading the word, and asking for support are so extremely helpful.  The past two years, our expenses have almost been completely covered by Sponsor donations, which has allowed us the opportunity to donate even more to our cherished cause.

Visit www.chromosome18.org to learn more about Ring 18, and other conditions on the 18th Chromosome.

Click on the "Sponsor" tab at the top of this page, to find the updated sponsor letter and form.

Thank you, Thank you!!

The Chase

I've sat inside restaurant waiting areas for 6 years, watching other families wrangle with their squirmy toddlers; fantasizing about what my Deak may be doing had he been born with the ability to do those kind of things at the appropriate age.

My heart, though quite healed, still meanders around "what if" land on occasion. Especially around little boys.

Tonight, six years in the making, my hopeful day-dreaming became a reality: we braved Red Robin with the walker.

Deak has been able to walk in his walker for a couple years, but has lacked the endurance to do so for a lengthy period of time. Due to his newfound ability of walking unassisted, the walker has become a tool for endurance walking, rather than supportive walking, and we are attempting to incorporate it more often in his life (he uses it at school daily, as he only method of getting around).

My heart leapt as I watched him cruise through the waiting area mock 90, and maneuver himself inside the small video game area. I privately whispered sincere prayers of gratitude as I chased him around the restaurant while he attempted to join others' at their tables and steal their food. My eyes welled as I listened to his sweet laugh while quickly cruising down the accessible ramp to our car.

I am so genuinely grateful for the opportunity to chase him.

I get to chase my own little blonde boy.

Man, I've waited a long time to say that.

My boy can walk.
He can walk.

I'll never ever tire of it.
Ever.

PS: If you see him coming, get out of the way fast. The crowd at Red Robin have the battle wounds to prove it.

Join us Saturday morning, May 4th to see him in action :)

*Reprint from our family blog